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Flyers |
The association has various brochures and information booklets about Turner Syndrome available for young girls, adults and doctors. |
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Information days |
Information sessions, about medical or social topics, are regularly organised. Doctors and other speakers are then invited to explain the topic in more depth. |
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Magazine |
Every trimester a newsletter containing a lot of informative articles and reports on seminars is published for members of the association. |
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Doctors, paramedics and students |
They can call upon us for scientific articles, research papers and collaboration in scientific research. |
You're not alone!!
Being confronted with Turner Syndrome can be a quite a task. For the parents, as well as the patient, it raises a lot of questions and is a very emotional experience. (Future) partners can also have a lot to deal with. One way to cope with all this is to talk about it with people who have experienced the same and can answer many questions. If a group seems too big a crowd for a first encounter, then a board member is always available to meet with you on a more personal basis.
The main objective of the association is to facilitate contact between fellow-patients in a relaxed atmosphere. By exchanging experiences, breaking the social isolation and providing information, we try to offer support to Turner patients and their families.
The association is not only there for sharing problems, but also for sharing fun times: since a few years we also offer activities focused on a specific target group. We have activities for the young (at heart) who are more adventurous (youth weekend, shopping day, etc). There is also a group for adult Turner-women that organises activities more suited to their interests (city or museum visit, coffee mornings, etc).
For individual questions, you can always contact the board. There is always someone to lend an ear should you feel the need to talk.