Endo-ERN
https://endoern.eu/
I am a proud member of Endocrine European Reference Network (Endo-ERN) and I continue to be a European Patient Advocacy Group (EPAG) even post Brexit. What is nice about Endo-ERN is you get to see it benefiting patients across Europe. Working side by side, dedicated doctors with specialist knowledge to share. I continue to learn from the many members and different countries involved. They also have some interesting webinars available, do have a look at their website. There are a few on TS on the website. Some very interesting talks on a number of projects moving forward all the details are on their website.

EuRReCa
https://eurreb.eu/
I am also a proud member of the EuRReCa project. This is very exciting we are working to create registries on Rare Conditions across Europe. I do enjoy taking part and learning from the others involved in the project. Registries play such an important role in rare conditions. Individually studies are small but collectively we can learn so much more.