The Turner Syndrome Society of Canada, a non-profit charitable organization, was founded in 1981 by an individual with TS who wanted to share experiences and information. It provides support services for individuals with TS and their families and disseminates up-to-date medical information to families, physicians and the general public.
Our Mission Statement
To improve the quality of life for individuals and families affected by Turner Syndrome. This is accomplished through the provision of public and professional awareness about the needs and concerns of individuals with Turner Syndrome and their families.
The goals of the Turner Syndrome Society of Canada include:
Providing one to one telephone support to girls and women who have Turner Syndrome and their families.
Providing up-to-date medical information to individuals with TS, their families, health care providers, and the general public.
Connecting those affected by TS to other individuals with shared concerns or to local groups.
Sharing news of the Society’s activities and events through a newsletter and periodic updates to our members
Enhancing public awareness about TS
Who runs the TSS?
The Turner Syndrome Society of Canada is largely a volunteer organization. It is overseen by a volunteer Board of Directors made up of women with TS, parents and health professionals. There are two paid staff for the Society, a part time Executive Director and one part-time administrative assistant. The Annual General Meeting of the TSS is held each year at the same time as the annual conference.
How is the TSS funded?
The Turner Syndrome Society of Canada is a non-profit charitable organization that derives funding from government grants, corporate donors, fundraising efforts and donations from the public. The National TSS organization is registered as a non-profit charity in the province of Ontario. Our charitable registration number is 12975 3190 RR0001.
What the Society Offers
Information is made available to the community, educators, doctors and other helping professionals, via our newsletters, this web site, and a reference library at our national office.
The conference presents new medical findings and provides an opportunity for a free exchange of information between individuals living with Turner Syndrome and family members.
Our local chapters and contact groups offer support and a sense of community to those dealing with TS. These support groups provide opportunities for individuals with Turners Syndrome to celebrate successes and build friendships, as well as a safe place to discuss fears, troublesome experiences and “taboo” subjects. Parents of girls with TS gain information to help their daughters, and the chance to network both with other parents and with successful adult women with TS. The Society also has a toll free telephone line for those seeking information or connection with other TS families.
Is there a local group near me?
Local Chapters of the Turner Syndrome Society of Canada are located in Vancouver(British Columbia), Edmonton (Alberta),Toronto (Ontario), Ottawa (Ontario) and Montréal (Quebec). Local contact groups exist in Victoria, Calgary Thunder Bay, and London. Each group has its own unique activities and services and is connected to the national organization. These groups host events such as informal support meetings, information sessions or local conferences, social gatherings and fundraisers, Most groups maintain a mailing list to keep members updated on local activities and to circulate local newsletters.
Canadian Turner Syndrome Society
Contact: Mary Edwards, Executive Director
Turner Syndrome Society of Canada
30 Cleary Avenue, Room 9
Ottawa, ON K2A 4A1
Phone: +1 613-321-2267
toll free (Canada and USA): 1-800-465-6744
Web site: www.turnersyndrome.ca